Wednesday 6 October 2010

UPS AND NOT SO UP'S

A year down the line and my eye is doing well, still there and the tumour continues to do what it should and stays free of blood vessels.
I've had a few trips back to London for check-ups, lots of long waits but well worth it as all seems to be good.
It's taken me a long while to work out what the not-so-ups are but I think it's mostly down to my dyslexia, or specifically, the disorientation.
I can't judge how fast traffic is moving, my depth perception is off, I constantly knock myself on door frames etc when walking through, fall up the stairs, accidentally hit people when gesticulating, feel the ground is far away when walking off steps or onto a patterned floor so that I walk like a young foal testing it's legs!
I've lost the sight in the far corner of the eye which can cause me to jump when people overtake me on that side and suddenly appear in front of me.
Writing is incredibly hard and even typing is very time consuming, I just don't seem to be able to co-ordinate very well.
My eyes will both sting and water if I spend long in front of a screen and I find I can't read even large print and with my glasses on for a while after.
I've lost hair from the back of my head, not enough to notice normally but enough for the hairdresser to ask if I've ever had a really high inverted cut back there! The good side to that is Lush, I love their products and am trying a sample of R&B, created for Afro hair which apparently breaks off at a certain length.
Another one of the up sides is definitely Calibre, (www.calibre.org.uk), for sending me talking books and free of charge, they help keep me marginally sane at least!

The 'joint' pain returned and I was given a diagnosis of fibromyalgia, which has a huge list of symptoms including 'visual disturbances'!! The fibro gives me far more gyp than the cancer, I seem to have pretty much constant pain somewhere or another that doesn't follow any pattern, so I'm back on painkillers. The fibro also causes my muscles to twitch and spasm, which varies from mildly annoying to excruciating pain, and I can't sleep now without chemical aid. What with drugs for this and that I think I must rattle rather!

I've recently started crafting again after an incredibly inspiring trip to a local contemporary art gallery and finding Pretty Scruffy, (www.prettyscruffy.com), Emily Harper of emilymews blog, and Arran Mackintosh of www.mushroominthebox.com to many small workshops there. I totally adore the work of these artists and will be adding them to my Santa wish list!